Our fifth book "Rare Love" (Chinese only) has been published! It is currently sold in all major bookstores. You may also order it online.
In celebration of the International Rare Disease Day, HKMPS has designed 3 sets of educational resouces for kindergarten, primary and secondary school teaching.
We believe that education plays a crucial role in inspiring the younger generation to care more about society and learn about the meaning of life. In ...
Chung Yeung Festival Day Trip
26 October 2009 (Monday) is a public holiday. All members and consultants of HKMPS are invited to join this day trip to the Inspiration Lake Recreatio ...
Two patients with MPS VI began ERT Others still pending government approval
After years of efforts and hard work, we received good news from HA on May 15, 2009, which was “International MPS Day” and the day after our hosting o ...
2009 Asia-Pacific MPS Conference Our Right To Treatment
We hosted a conference from 12 to 14 May, with invitations to sister organizations in the Asia Pacific region to share experience on their process abo ...
Scouts Day Camp
13 April 2009 (Monday) is Easter holiday. We will go to Tai Tam Scouts Centre for a day of experience as boy and girl scouts. Led by the Hong Kong Isl ...
Buddies Scheme Kick-off Ceremony
The Buddies Scheme is the first program ever in Hong Kong where you can pair-up one-on-one with patients with rare genetic diseases. The scheme aims t ...
Photo Exhibition — “I’m not a Diving Bell, not a Butterfly. I’m your world”
Some of our MPS patients and families have previously completed a photography class. This exhibition showcases their photos about living with rare gen ...