2022 世界龐貝氏症日 讓愛‧分享 — 龐貝氏症的家

2022 世界龐貝氏症日 讓愛‧分享 — 龐貝氏症的家

淇淇患有嬰兒型龐貝氏症,此型患者心肌肥大、肌肉張力低,更或許活不過一歲,但淇淇及家人也選擇樂觀面對,積極醫治及生活,至今一家人已攜手走過十多個年頭。
感謝兒科專科醫生潘永潔給各龐貝氏症患者的祝福:「願我最虔誠的祝福,帶給你無盡的喜悅。願你每一個今天都過得幸福,願你每一個明天都比今天快樂。」

2022 世界龐貝氏症日 讓愛.分享

2022世界龐貝氏症日 讓愛❤️.分享

每年的4月15日是世界龐貝氏症日🌏,藉著此日希望喚起大眾對認識及關注龐貝氏症。

我們將在4月1日起一連五週,分享有關龐貝氏症的故事,讓大家了解龐貝氏症及患者在抗病路上的奮鬥經歷。

今年,讓我們為龐貝氏症患者添一份愛❤️,添一份力量!💪🏻

The Orange Cat (2019) by Lucia Chan

I was inspired by an image on Google of a picture featuring a crowd of grey people but with one orange man amongst them.

I have transformed the idea from human to cats (as I am a cat lover). I keep one cat in orange which represents patient living with rare disease; and others in either white, grey or blue, showing the fact that everyone is the same – also somewhat different.

Though the orange cat stands out from the crowd, it is still a cat – in fact, quite a special one!