Media Clippings
Episode 1: The Voice of Pompe DiseaseIn this episode, our host, Terry Lai, Vice Chairman of HKMPS, invites two medical students from HKGeneSoc, Amy and Angus, to share their experiences of living with Pompe disease and their insights as members of HKMPS.
Episode 2: International Rare Disease Day
In this episode, we invited Mr Stephen Ma, a founding member of HKMPS who continues to serve on the executive committee, to speak with Terry Lai, the vice chairman of HKMPS, and two guest hosts, Chelsea and Angus, medical students from HKGeneSoc. They share interesting stories and personal experiences related to the International Rare Disease Day, which is held at the end of February each year.
Episode 3: MPS Type VI
In this episode, we are honoured to invite 15-year-old Chu Yat Long, a member of the HKMPS who suffers from MPS VI, and his father to share their journey in dealing with rare disease, as well as their touching stories of growth, speaking with programme host Terry and two medical student guest hosts, Sophie and Amy from HK GeneSoc.
Episode 4: Hong Kong’s Drug Policy
In this episode, we are delighted to welcome Dr Luk Che-chung, former Chief Executive of the Hospital Authority’s Kowloon East, Hong Kong West, and Hong Kong East Clusters. He talks to the show’s host, Mr Terry Lai, Vice Chairman of HKMPS, and Beatrice, a medical student guest host from HKGeneSoc, about current drug policies in Hong Kong, as well as future policy directions for drug registration and research. Dr Luk also discusses his memorable experiences while working for the Hospital Authority.
Episode 5: Duchenne Muscular Dystrophy
In this episode, we are honoured to interview 15-year-old Chan Tsz Kin, a member of HKMPS who has Duchenne Muscular Dystrophy, and his mother Michelle. They join host Terry and two guest co-hosts from HKGeneSoc, medical students Sophie and Chelsea, to discuss Tsz Kin and his mother’s emotional journey through this rare disease, as well as their moving story of growth.
Episode 6: Rare Diseases and Life
In the first half of this programme, Beatrice, a medical student guest host from the Hong Kong Genetics Society (HKGeneSoc), discusses the organisation’s founding, structure and vision. In the second half, Terry, the programme’s co-host and HKMPS vice chairman, shares his favourite films and television shows about rare diseases.

Cable TV programme Wish features MPS3A patient Hui Wai-cheung and his family in Episode 13 of 2024 (Available in Chinese only)






































































