Media Clippings

2024
2024-2-21
Podcast Series (in Cantonese)
Episode 1: The Voice of Pompe DiseaseIn this episode, our host, Terry Lai, Vice Chairman of HKMPS, invites two medical students from HKGeneSoc, Amy and Angus, to share their experiences of living with Pompe disease and their insights as members of HKMPS. Episode 2: International Rare Disease Day In this episode, we invited Mr Stephen Ma, a founding member of HKMPS who continues to serve on the executive committee, to speak with Terry Lai, the vice chairman of HKMPS, and two guest hosts, Chelsea and Angus, medical students from HKGeneSoc. They share interesting stories and personal experiences related to the International Rare Disease Day, which is held at the end of February each year. Episode 3: MPS Type VI In this episode, we are honoured to invite 15-year-old Chu Yat Long, a member of the HKMPS who suffers from MPS VI, and his father to share their journey in dealing with rare disease, as well as their touching stories of growth, speaking with programme host Terry and two medical student guest hosts, Sophie and Amy from HK GeneSoc. Episode 4: Hong Kong’s Drug Policy In this episode, we are delighted to welcome Dr Luk Che-chung, former Chief Executive of the Hospital Authority’s Kowloon East, Hong Kong West, and Hong Kong East Clusters. He talks to the show’s host, Mr Terry Lai, Vice Chairman of HKMPS, and Beatrice, a medical student guest host from HKGeneSoc, about current drug policies in Hong Kong, as well as future policy directions for drug registration and research. Dr Luk also discusses his memorable experiences while working for the Hospital Authority. Episode 5: Duchenne Muscular Dystrophy In this episode, we are honoured to interview 15-year-old Chan Tsz Kin, a member of HKMPS who has Duchenne Muscular Dystrophy, and his mother Michelle. They join host Terry and two guest co-hosts from HKGeneSoc, medical students Sophie and Chelsea, to discuss Tsz Kin and his mother’s emotional journey through this rare disease, as well as their moving story of growth. Episode 6: Rare Diseases and Life In the first half of this programme, Beatrice, a medical student guest host from the Hong Kong Genetics Society (HKGeneSoc), discusses the organisation’s founding, structure and vision. In the second half, Terry, the programme’s co-host and HKMPS vice chairman, shares his favourite films and television shows about rare diseases.
2024-3-11
2024-4-3
2024-4-25
2022
2021
2021-1-13
For first-time authors, the difficulties of getting published can be daunting. But publishing is changing. And new technologies like print-on-demand and direct-to-consumer sales make it easier for any of us to get into print.
2021-5-6
2021-6-22
2017
2017-10-07
2017-10-07
2017-10-07
Xiao Hiu-chun will get weekly injections for the rest of his life, to slow the effects of his rare condition.
2017-09-18
2017-09-17
(Available in Chinese only)
2017-05-18
2017-04-24
(Available in Chinese only)
2017-03-12
2017-03-09
2017-03-08
2017-03-08
2017-02-26
2017-02-09
(Available in Chinese only)
2017-02-05
(Available in Chinese only)
2017-01-04
(Available in Chinese only)
2017-01-03
2017-01-03
2016
2016-12-29
2016-12-29
2016-12-28
2016-12-28
2016-12-22
(Available in Chinese only)
2016-11-22
(Available in Chinese only)
2016-10-01
2016-07-18
2016-07-18
2016-06-04
(Available in Chinese only)
2016-06-03
2016-04-29
2016-04-15
2016-04-15
2016-04-15
2016-04-15
2016-04-15
2016-04-15
2016-04-15
2016-02-29
2016-02-28
2016-02-22
2013
2013-12-23
2013-12-09
2013-11-25
2013-11-11
2013-10-28
2013-10-28
2013-10-14
2013-10-14
2013-10-07
2013-10-07
2013-09-23
2013-09-23
2013-09-09
2013-09-02
2013-08-07
2013-07-31
2013-07-24
(Available in Chinese only)
2013-07-17
(Available in Chinese only)
2013-07-10
2013-07-03
(Available in Chinese only)
2013-06-26
2013-06-19
2013-06-05
2013-05-29
(Available in Chinese only)
2013-05-22
2013-05-15
2013-05-13
(Available in Chinese only)
2013-04-19
2013-03-07
2013-02-28
2013-02-28
2013-02-25
2013-02-25
2013-02-25
2013-02-25
2013-02-25
2013-02-25
2013-02-25
2013-02-25
2013-02-25
2013-02-21
2013-02-15
2010
(Available in Chinese only)
2010-05-18
2010-05-17
(Available in Chinese only)
2010-03-24
2010-03-21
2010-03-20
(Available in Chinese only)
2010-03-10
2010-03-10
2010-02-28
2010-02-28
2010-02-28
2010-02-28
2010-02-28
2010-02-28
2010-02-28
2010-02-28
2010-02-28
2010-02-27
SingPao, Page A03, Local News, “Consultation for medical insurance to begin in the next half of the year”
(Available in Chinese only)
2010-02-27
2010-02-25
2010-02-25
2010-02-25
2010-02-25
Hong Kong Daily News, A03, News – Medical Expenditures, “Promote transfer of the chronically ill to the private market”
(Available in Chinese only)
2010-02-25
2010-02-25
SingPao, Page A07, Top News, “Beef up primary health care services”
(Available in Chinese only)
2010-02-25
2010-02-25
2010-02-25
2010-02-25
AM730, Page M10, News, “Hospital Authority to receive 1.24 billion to beef up services”
(Available in Chinese only)
2010-02-25
2010-02-25
SingTao News, Page A07, Top News, “1.5 billion healthcare funding to benefit 86,000 patients”
(Available in Chinese only)
2010-02-25
South China Morning Post, Page G03, Going Out, Arts: Event “The Song of Rare Disease Families”
2010-02-25
Ming Pao News, Page A06, 2010-11 Financial Budget – Health, “Cancer and rare genetic disease drugs included into Formulary to benefit 38000 patients”
(Available in Chinese only)
2010-02-25
Ming Pao News, Page A06, 2010-11 Financial Budget — Health, “Hope renewed for Form 5 MPS student”
(Available in Chinese only)
2010-02-25
2010-02-24
2010-02-09
2010-02-09
2010-02-07
2010-02-07
2010-02-07
2010-02-07
2010-01-03
2009
2009-12-21
(Available in Chinese only)
2009-12-02
2009-12-01
SingTao Daily, “Be an environmentally friendly kid”
(Available in Chinese only)
2009-12-01
(Available in Chinese only)
2009-11-28
2009-11-27
2009-11-27
2009-11-27
(Available in Chinese only)
2009-11-27
2009-11-25
2009-11-25
2009-11-01
Sing Tao News, Genetic disease patient unable to care care of himself. Hospital rejected Patient’s mother to look after the son.
(Available in Chinese only)
2009-11-01
2009-10-07
2009-08-13
2009-08-01
Ming Pao Weekly Magazine, “MPS Patient waits for treatment for many years. Luckily, he can receive treatment now.”
(Available in Chinese only)
2009-07-21
Hoje Macau, Society page, “The disease more commonly affects Portuguese. Macau does not have any cases of mucopolysaccharidosis type VI”
(Available in Chinese only)
2009-07-21
2009-06-10
2009-06-10
2009-06-10
2009-06-10
2009-06-10
2009-06-07
2009-06-06
2009-05-15
2009-05-15
SingPao, Health section, Page A12, “MPS patients hope for more medical support”
(Available in Chinese only)
2009-05-15
2009-05-15
2009-05-11
RTHK, Life on Sunday, “HKMPS to host international conference in May”
(Available in Chinese only)
2009-03-19
China News Service Photo website, Photo News, “Mothers share thoughts and feelings on caring for their sick child on Mothers Day”
(Available in Chinese only)
2009-03-19
The Standard, Young Post, Page Y4, “Corrections and clarifications”
2009-03-17
The Standard, Young Post, Page Y4, “Be a friend to those in need”
2009-03-09
2009-03-09
2009-03-09
2009-03-08
2009-03-08
2009-03-08
2009-03-08
2009-03-08
2009-02-10
2009-02-10
2009-02-10
2009-02-10
2009-01-07
2009-01-07
2008
2008-12-01
Grateful Heart Magazine──Eric Ma
(Available in Chinese only)
2008-12-01
Pre-School Magazine──Eric Ma
(Available in Chinese only)
2008-10-19
Sunday Profile “Living In This Moment”──Eric Ma, John Liu
(Available in Chinese only)
2008-10-13
(Available in Chinese only)
2008-10-06
(Available in Chinese only)
2008-09-21
2008-08-17
(Available in Chinese only)
2008-08-11
RTHK Channel 5, Life Sunday──Tang Wai-man, Tang Wai-chi
(Available in Chinese only)
2008-07
2008-07-04
(Available in Chinese only)
2008-05-20
(Available in Chinese only)
2008-05-12
(Available in Chinese only)
2008-05-12
(Available in Chinese only)
2008-05-05
(Available in Chinese only)
2008-04-13
Commercial Radio, “Kind People along the Way”
(Available in Chinese only)
2008-03-14
The Metro──Dr Poon
(Available in Chinese only)
2008-03-11
(Available in Chinese only)
2008-03-06
ATV News──Patient group urges relaxing of medication sponsorship mechanism
(Available in Chinese only)
2008-02-26
Apple Daily, Pie At Apple Forum, “Bring Them Hope”
(Available in Chinese only)
2008-01
2007
2007-11
2007-10-27
2007-10-25
(Available in Chinese only)
2007-10-23
Commercial Radio, Share My Song──Eric Ma
(Available in Chinese only)
2007-10-22
2007-10-16
(Available in Chinese only)
2007-10-10
(Available in Chinese only)
2007-10-05
RTHK Channel 2, Wisdom Citizen──Eric Ma, Nurse Lai
(Available in Chinese only)
2007-10-04
(Available in Chinese only)
2007-10-01
2007-09-19
TVB, Pleasure and Leisure──Dr Xuan, Eric Ma
(Available in Chinese only)
2007-09-05
2007-08-08
(Available in Chinese only)
2007-08-06
(Available in Chinese only)
2007-08
2007-08
2007-07-31
2007-07-28
2007-07
RTHK Channel 2 program, Knowledge Co.──Dr Xuan
(Available in Chinese only)
2007-07-25
Commercial Radio program “Them, You and Me”──Mr Cheng, Mr Stephen Ma
(Available in Chinese only)
2007-07-19
(Available in Chinese only)
2007-07-16
(Available in Chinese only)
2007-07-16
(Available in Chinese only)
2007-07-16
(Available in Chinese only)
2007-07-16
2007-07-16
2007-07-16
2007-07-16
2007-07-16
2007-07-16
2007-07-16
2007-07-06
2007-07-05
(Available in Chinese only)
2007-05-28
(Available in Chinese only)
2007-05-23
(Available in Chinese only)
2007-05-21
2007-05-21
2007-04-19
(Available in Chinese only)
2007-04-17
(Available in Chinese only)
2007-03
2007-03-30
2007-03-14.15
2007-01
Lisa Food Magazine──John Li
(Available in Chinese only)
2007-01
Pre-School Magazine──Eric Ma
(Available in Chinese only)
2007-01-04
(Available in Chinese only)
2007-01-04
2007-01-04
2006
2006-12-26
2006-12-26
Ming Pao News & Apple Daily──”Dream Come True” (Karen Chau)
(Available in Chinese only)
2006-11-24
(Available in Chinese only)
2006-11-07
(Available in Chinese only)
2006-11-07
2006-10-31
2006-10-30
2006-10-25
2006-10-22
2006-10
Commercial Radio program──Eric Ma
(Available in Chinese only)
2006-10-10
(Available in Chinese only)
2006-10-01
Apple Daily──Exchange with Taiwan patient representatives
(Available in Chinese only)
2006-10-01
2006-09-28
(Available in Chinese only)
2006-09-28
2006-09-28
Sing Tao News──Eric Ma
(Available in Chinese only)
2006-08-08
(Available in Chinese only)
2006-08-08
(Available in Chinese only)
2006-08-08
2006-06-27
2006-06-17
2006-05-07
RTHK, Hong Kong Connection──Eric Ma
(Available in Chinese only)
2004-2005
2005-05-08
(Available in Chinese only)
2005-05-03
Wen Wei Po, Local News, Page A25, “High Spirit Despite Suffering from Sickness”──Wong Wing Kan, Karen Chau, Yuen Hei Suet
(Available in Chinese only)
2005-05-03
(Available in Chinese only)
2005-05-03
2005-05-03
2005-05-03
Ming Pao News, Local News, Page A11, “Atrophy Body Earns A Wonderful Life”
(Available in Chinese only)
2005-05-03
Ming Pao News, Local News, Page A11, “No Hospital Specialty for Rare Genetic Diseases. NGO Points to Missed Opportunities”
(Available in Chinese only)
2005-05-03
Hong Kong Daily News, Local News, Page A9, “No One is Hiring the Short, Sick Patients”
(Available in Chinese only)
2005-05-03
2005-05-03
2005-05-03
Ta Kung Pao, Local News, Page A14, “40 Hong nKongers Suffering From Rare Genetic Diseases. Large Head, Short Height and Life, Needs 7 Digits For Medications Each Year”, & “23-Year-Old In Mommy’s Brace”
(Available in Chinese only)
2005-05-03
Hong Kong Economic Times, Local News SpeedPost, Page A34, “Hong Kong MPS Mutual Aid Group Formed”
(Available in Chinese only)
2004-11-08
RTHK, Hong Kong Connection, Episode 1111, “No Regret in Life”──Eric Ma
(Available in Chinese only)
2004-11-08
Wen Wei Po──Legislators for Allocating Resources by Risks
(Available in Chinese only)
2004
(Available in Chinese only)
1998-2000
(Available in Chinese only)
2000
2000-01-07
(Available in Chinese only)
2000-01-03
2000-01-03
(Available in Chinese only)
1999-12-26
Apple Daily, Local News, Page A4, “I Give So Much that I Won’t Bend to Sickness’ Chan Man Fong Draws Out Her Rainbow of Life”──Chan Man Fong
(Available in Chinese only)
1999-11-05
Apple Daily, Community section, Page F7, “Disabled Teenage Girl Dreams of Becoming A Writer”──Chan Man Fong
(Available in Chinese only)
1999-10-21
Apple Daily, Community section, Page F5──MPS Mutual Aid Group First Gathering
(Available in Chinese only)
1999-10-07
Apple Daily, Local News, Page A3, ”MPS Patient Chan Man Fong Grateful for Praises”──Chan Man Fong
(Available in Chinese only)
1999-07-17
1999-06-29
1998-04-28
Ming Pao News, Supplement, Page D2
(Available in Chinese only)