2022 世界龐貝氏症日 讓愛.分享

International Pompe Day 2022: Let’s Share Some Love❤️

The International Pompe Day 🌏 is celebrated every year on 15 April to raise awareness of the Pompe disease.

For five weeks starting on 1 April, we will be sharing stories about the disease and the struggles of those living with it.

This year, let’s show some love for people with Pompe disease ❤️ and give them some strength! 💪🏻

杜勤創: 「不去檢驗像是會給予自己少少的希望」

Ken To: “Not testing would leave me with a little hope.”

With his mother bedridden by Huntington’s Disease, Ken has been her primary caregiver for 16 years. Adding to this challenge is a 50% chance of Ken carrying the same genetic disease himself. Both of Ken’s sisters have gone through tests and confirmed that they do not have the disease. But why would Ken rather not know?

Eric Ma

Having Mucopolysaccharidoses give me a lot of inconveniences physically, and sometimes I’m upset with a lot of hurdles in life, but I have also been g ...