The International Pompe Day 🌏 is celebrated every year on 15 April to raise awareness of the Pompe disease.
For five weeks starting on 1 April, we will be sharing stories about the disease and the struggles of those living with it.
This year, let’s show some love for people with Pompe disease ❤️ and give them some strength! 💪🏻
Our children’s magazine, Little Bean, is out! Come to the Hong Kong Book Fair during 15-21 July and visit us at the Bbluesky booth (3G-A04) to purchase your copy.
We will also host a soft-launch on 20 July (Mon) at 2:30pm at the Hall 3F-G Concourse, during which Dr Grace Poon of the Hong Kong Society of Inborn Errors of Metabolism will give a sharing. Do come and join!
If you would like to buy a copy of the magazine but can’t make it to the Book Fair, please send us an email.