香港黏多醣症暨罕有遺傳病互助小組 Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group

香港黏多醣症暨罕有遺傳病互助小組 Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group

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Patient Sharing

Eric Ma

Having Mucopolysaccharidoses give me a lot of inconveniences physically, and sometimes I’m upset with a lot of hurdles in life, but I have also been given very ...

Artwork

Mucopolysaccharidosis (2013)
by Ashley Wong

As a genetic counselor, I help patients find out if there is a genetic difference that explains their health conditions. However, my duty to my patients is not only to address their medical concerns but also their emotions.

Albino Deer (2019)
by Jocelyn Wong

Albino deer is mythical beast born with recessive genes like MPS. The aurora extend from the antlers indicate its rare and lived as same as other creatures on earth.

The Orange Cat (2019)
by Lucia Chan (aged 12)

I was inspired by an image on Google of a picture featuring a crowd of grey people but with one orange man amongst them. I have transformed the idea from human to cats (as I am a cat lover). I keep one cat in orange which represents patient living with rare disease.

香港黏多醣症暨罕有遺傳病互助小組 Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
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