Related Links

Hong Kong Organisations for Rare Genetic Diseases

Tuberous Sclerosis Complex Association of Hong Kong
Little People of Hong Kong
Joshua Hellmann Foundation for Orphan Disease
Hong Kong Neuro-muscular Disease Association Limited
Families of SMA Charitable Trust
Hong Kong Marfan Syndrome Association (Available in Chinese only)
Hong Kong Spinocerebellar Ataxia Association (Available in Chinese only)
Systemic Vasculitis Mutual Support Group (Available in Chinese only)
Wilson's Disease Hong Kong (Available in Chinese only)
Primary Immunodeficiency League (Available in Chinese only)
The Hong Kong Association Of Myasthenia Gravis (Available in Chinese only)
Retina Hong Kong (Available in Chinese only)

Overseas Organisations for MPS

(Australia) Mucopolysaccharide & Related Diseases Society Australia Ltd. (Australian MPS Society)
(Canada) The Canadian Society for Mucopolysaccharide and Related Diseases Inc.
(United Kingdom) Society for Mucopolysaccharide Diseases
(USA) National MPS Society

Overseas Organisations for Rare Genetic Diseases

(Malaysia) Malaysia Lysosomal Diseases Association (MLDA)
(Singapore) Rainbow Across Borders (RAB)
(Europe) RareConnect
(Europe) EURORDIS
(Europe/Belgium) E.S.PKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria)
(France) Orphanet
(The Netherlands) International Pompe Association
(Switzerland) Rare Diseases International
(Australia) Rare Voices Australia
(Australia) Fabry Support Group Australia Inc.

Gaucher's disease

National Gaucher Foundation

Other Resources

For information about the different types of MPS and other rare genetic diseases, please click here.

What Is Orphan Drug?
What Is Orphan Disease?
Website on MPS I
Website on MPS II
Website on therapy for MPS II
Website on therapy for MPS IV
Website on therapy for MPS VI
Relationships Among Height, Weight, Body Mass Index, and Age in Taiwanese Children with Different Types of Mucopolysaccharidoses
Website on Pompe Disease
CareER

We hope you are able to find valuable information using the links above. We offer these links for more resources about MPS and other rare genetic diseases. Inclusion in this list does not constitute any real or implied endorsement of their content.

Updated: October 2019