媒体报导
今集节目主持HKMPS 副主席赖家衞(Terry),将会向两位来自HKGeneSoc的医科生客席主持Amy 和 Angus ,分享他患上庞贝氏症的经历,以及作为 HKMPS 副主席的所见所闻。
第二集介绍:「国际罕病日」今集邀请了HKMPS创会成员、现任执委马安达先生参与节目录制,他将与节目主持HKMPS 副主席赖家衞(Terry)以及两位来自HKGeneSoc的医科生客席主持Chelsea 和 Angus ,讨论有关每年2月底“国际罕病日”的趣闻以及自身经历。
第三集介绍:「黏多醣贮积症第六型」今集有幸邀请到HKMPS会员、患有黏多醣贮积症六型的15岁少年朱逸朗,以及朱爸爸参与节目录制,并与节目主持Terry以及两位来自HKGeneSoc的医科生客席主持Sophie和Amy聊天交流,分享逸朗和爸爸在面对罕病的心路历程,和动人的成长故事。
第四集介绍:「香港药物政策」今集我们有幸邀请到前医院管理局九龍东、港岛西及港岛东医院聯网总监陆志聪医生参与节目录制,并与节目主持HKMPS 副主席赖家衞 (Terry) 以及来自HKGeneSoc的医科生客席主持Beatrice,探讨有关香港现时的药物政策、以及未来药物注册和研究的政策方向,并分享从医以来在医管局工作的难忘经历。
第五集介绍:「杜兴氏肌肉萎缩症」今集有幸邀请到HKMPS会员、患有杜兴氏肌肉萎缩症的15岁少年陈梓键,以及梓键妈 Michelle参与节目录制,并与节目主持Terry以及两位来自HKGeneSoc的医科生客席主持Sophie和Chelsea聊天交流,分享梓键和妈妈在面对罕病的心路历程,和动人的成长故事。
第六集介绍:「罕病与生活」今集的《罕友奇遇记》有节目主持HKMPS 副主席赖家衞 (Terry) 及来自HKGeneSoc的医科生客席主持Beatrice,节目的上半节由Beatrice介绍有关香港遗传学学生协会(HKGeneSoc)的成立、结构及发展愿景,下半节由Terry分享有关罕见病的影视作品、并推荐给听众朋友。
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