Our children’s magazine, Little Bean, is out! Come to the Hong Kong Book Fair during 15-21 July and visit us at the Bbluesky booth (3G-A04) to purchase your copy.
We will also host a soft-launch on 20 July (Mon) at 2:30pm at the Hall 3F-G Concourse, during which Dr Grace Poon of the Hong Kong Society of Inborn Errors of Metabolism will give a sharing. Do come and join!
If you would like to buy a copy of the magazine but can’t make it to the Book Fair, please send us an email.
Summer has come. Beans fall on to the soil in the garden, waiting to grow up. Just like everyone else, Beanie works hard everyday. He eats. He sunbathes. He exercises. And he dreams of growing up, as every other bean does.
But he doesn’t grow much taller….
…“No growing, life’s ending” is the doctors’ prophecy to him.
This is usually the beginning of the story for Mucopolysaccharidoses (MPS) patients. Like other rare genetic diseases, this disease is hard to diagnose prior to pregnancy, and medical treatment is extremely costly. Many patients and parents are exhausted. Is this a joke on their genes? Is this a test of resolution imposed by destiny?
They have small bodies, but their dreams are big, and they never give up moving forward.
The donation we collect is spent primarily on administration, treatment funds, public education, training, community activities, medical/learning devices.
Your donation will help us implement self-help and mutual aid efforts among our patients.