杜勤創: 「不去檢驗像是會給予自己少少的希望」

Ken To: “Not testing would leave me with a little hope.”

With his mother bedridden by Huntington’s Disease, Ken has been her primary caregiver for 16 years. Adding to this challenge is a 50% chance of Ken carrying the same genetic disease himself. Both of Ken’s sisters have gone through tests and confirmed that they do not have the disease. But why would Ken rather not know?

Lifewire Run 2019 – Short Films by Little Directors

Lifewire Run 2019 – Short Films by Little Directors

Lifewire Run 2019 invited three young patients to put dream stories to videos. From developing the concepts, story boards to filming and production, these little directors went all in. Their videos even starred artiste Leanne Li, the ambassador of Lifewire Run 2019.

Eric Ma

Having Mucopolysaccharidoses give me a lot of inconveniences physically, and sometimes I’m upset with a lot of hurdles in life, but I have also been g ...

Rare Disease Day 2018

Rare Disease Day 2018

For Rare Disease Day 2018, we will host a documentary screening and sharing session at the Science Park. We will show the micro-films that students of ...